Tuesday, December 30, 2008
Seth is up to 9lbs 6 oz now. Dane was 9 lbs 8 oz when he was born. Seth has been sick these past few days. He's had a temperature and been very cranky. He hasn't had a fever at all today, so I am hoping the worst of it has passed. Seth had tubes put in his ears on December 15th to drain any fluid that could be in his ears preventing him from hearing. So, I hope it has worked. I don't know if it has. The only thing different about him is that he crys a lot more now than he ever did. Perhaps all the noise is bothering him! Ok, so I've got the fussy little man on my lap now and standing is the only thing that seems to calm him. Happy New Year!
Monday, November 17, 2008
Sunday, October 26, 2008
~Seth~ 4 months old, adjusted age of 4 weeks
I have been home from the hospital now for three weeks. Mom's got me figured out finally. The first two days were rough because Mom wanted me to nurse, but I'm smarter than she is. Sucking from a bottle is way easier and when you are as hungry as I am, who wants to wait for the milk to "let down". I do love being close to mommy, though. I like when she lays me against her chest and I can hear the rythmn of her heart and her breathing. For the most part I sleep all day. Every two to three hours I wake up for something to eat. I can guzzle down two to three ounces of mom's milk at a time. She's started fortifying my milk to help me gain weight a little faster. Sometimes it upsets my tummy a little. At my last weigh in I was 5 lbs. 12 oz. This was up two ounces from the week before, and up four since discharge. I will hit that 6 lb. mark soon and can't wait to show off in my new outfits! Just wait until I hit eight pounds! You won't even recognize me! I'm a pretty easy going guy. I hate to be in a dirty pair of pants, so if you keep me clean and dry, life can't get much better! The car seat isn't that bad to ride in. Mommy and I take trips to the doctor together. We saw the opthamologist last week. Boy, that wasn't fun. First they put these drops in your eyes that make everything look blurry and way too bright. Then they hold you tight while they look into your eyes. The eye clamps are not very comfortable. But thank goodness this was the last time I had to do that. The doctor says my eyes are fully vascularized with no sign of retinal detachment. He says I need to come back in three months for an eye exam. I don't know how they know if I need glasses, but they are pretty smart. Well, mom says I need to get off the computer. I have to go with her to choir practice. She plays the piano. I love when she sings and plays for me!
Wednesday, October 22, 2008
Tuesday, October 14, 2008
Sunday, October 5, 2008
On the drive home!
At home with all my brothers and sisters and Grandma and Grandpa Stailey!
We are so glad to be home and especially because we don't have to make the long trip up to the hospital anymore! Well, not on a regular basis. We still have a long list of doctors to see, but at least we are home. Seth did not pass his hearing test, so we get to see an ENT (ear, nose, throat doc) and repeat the test in a month or so. We have follow ups with the surgeon, optamologist, and endocrinologist as well. We had great doctors and nurses who took care of us during our stay and we will miss them. (Here's a shout out to Chris Malone, who I don't know will ever read this blog, but if she does, she's one heck of a nurse!) We are forever grateful to everyone who prayed on our behalf or even just kept us in their thoughts. And most importantly all praise and glory to a loving Heavenly Father who has blessed us with Seth and for carrying us through this long adventure. And so the journey continues. It's not over yet. We still have a lot to go through with Seth, but he's doing amazingly well. And so, here we go!
Saturday, October 4, 2008
Wednesday, September 24, 2008
Two of the incisions on his belly.
Awake and wanting the breathing tube out. It was hard to see him this way! Poor guy!
After extubation, still mad, though cause they left the Anderson tube in.
Still mad. Took awhile and a little bit Adavan to soothe him.
Today after having the Anderson tube out. Life is getting better!
Sunday, September 21, 2008
Monday, September 15, 2008
Here is a picture of Seth taken on Sunday.
Today before his surgery. (Had to dope him up so he wouldn't be so mad because he was hungry! Where's my momma?)
Mom and Seth before surgery. Like the disco ball?
After surgery. Poor little guy! But all better now!
Seth had surgery today! And everything went well! They put his intestines back together and everything looked healthy and well. They also fixed two hernias, one at the site of his stoma and the other in the groin. They also took out his apendix. It was an eventful day. We were planning on the surgery being at 7:30 this morning, but they called us right before we left this morning and told us it was rescheduled for 1:45 in the afternoon. Good thing they caught us before we left! The surgery took about two and a half hours. In a couple of days we'll start feedings again. I'm just exhausted and ready to relax. I'm going to read scriptures with the kiddos and put them to bed and maybe take a bath!
Sunday, September 7, 2008
Tuesday, September 2, 2008
Saturday, August 30, 2008
Seth is in an open crib! Hurray! This was taken on Tuesday. He is just improving by leaps and bounds! He is also on a regular nose cannula. And we have started the long process of teaching him how to feed from a bottle and then eventually to nursing. His current weight is 4 lbs 6 oz. Today he had laser surgery on his eyes. I mentioned ROP earlier, Retinopathy of Prematurity. This is why he had the laser surgery done. He isn't too bad off with the abnormal blood vessels in his eyes, but they didn't want it to get any worse because it could lead to detachment of the retina. It is my understanding that they went in and zapped the abnormal blood vessels so they wouldn't continue growing abnormally. And I like to use the word abnormal a little too abnormally. :) Anyways, that surgery was done around 1:30 this afternoon. He is still on a ventilator and they are just waiting for him to wake up so they can get him off. Hopefully he'll be fine and it won't be days like the last surgery. Seth is such a miracle!
Sunday, August 24, 2008
Tuesday, August 12, 2008
So another thing if you want to read up about is ROP, Retinopathy of Prematurity. Seth's eyes are looked at each week to keep an eye on this condition. Right now he has stage 2. http://www.nei.nih.gov/health/rop/
We love the little guy so much!
Thursday, August 7, 2008
Ok, two things here that I've learned (out of many):
Too much oxygen can cause blindness in a preemie.
Too much antibiotics damages inside their ears.
That's why they constantly monitor these levels when using oxygen and antibiotics.
Monday, August 4, 2008
Thursday, July 31, 2008
This was actually recorded on Tuesday. As they were putting him on cpap, he was making tiny noises. Then out came his voice! So I recorded some of it, as it is the first time we've heard it. Before when he'd cry it was always silent. Now he can yell out to the world! Very exciting!
Wednesday, July 30, 2008
Monday, July 28, 2008
Dane enjoying some lunch.
Kate with her cousin Kelly.
Emily. She doesn't care how she looks.
Karsten and Emily were in a race to see who could get the dirtiest.
Dane and his cousin Morgan.
Took the kids up to Bridal Veil falls for some fun. We had a picnic and then went and played in the water. It was nice to get out. We're all trying to deal with daddy being gone and we just had to get out of the house!
He's got an arterial line in this arm, hence the bat he swings around.
Peeking out at us!
Where do I begin? We've had our ups and downs this past week. On the 19th of July, Seth was switched from Fentanyl (sedative) to morphine. Because the dose was a little more than he needed, he decided he didn't need to breathe. In when the breathing tube again. Two days later it was apparent that he had an infection. So we start antibiotics. Then his bowels went from yellow to green. Now we stop the feedings to see what's going on there. They did several x-rays and at one point it was even thought that he had a bowel obstruction. So they put some kind of enema into his ostomy and that went up to his stomach. X-rays showed that it was all clear. Thank goodness. Most likely his green bowels are due to him being sick. So today, Monday, he is on the mend and looking very nice. He is doing so well that they took out the Anderson tube (a tube that suctions his tummy) and are going to put his feeding tube back in and start some feedings. Yeah! And tomorrow they are going to attempt to take out the breathing tube again! He is on such a low rate of oxygen right now and that is good. So, now Seth is six weeks old. I can't believe how much he's changed. He hasn't grown much, but his facial features have changed over the weeks. Having him in the NICU is a different experience. When we bring him home, he won't be a newborn. I guess I keep thinking that when he comes home, it will be like having a newborn. But it won't, in some ways. We won't have those tar like diapers to change. We won't have to worry about the umbilical cord and keeping that dry and clean until it falls off. It's weird in a way how time is flying by so fast and I feel like I'm missing something. I suppose that's because I need to live in the moment. Sometimes it's easy to look ahead and anticipate the future, and not really live in the moment. Keep up the good work Seth!
Tuesday, July 15, 2008
Friday, July 11, 2008
His PDA is open a tiny bit again, but it is posing no problems, so they aren't going to do anything about it. He is up to 7 cc's every three hours for feedings now. He's doing really well!
Monday, July 7, 2008
Saturday, July 5, 2008
I've changed the picture of Seth. I forgot I had this one with his eyes openend so I thought I'd share.
Wednesday, July 2, 2008
I found this website helped me to understand better what the ductus arteriosis was.His blood pressure is stable as of now, which is good. When he's weaned from of medicine, the next few hours are always a little stressful as we wait and see if he tolerates well or not. So far so good.He has a little ostomy bag connected to his tummy for now. In the near future they will take him back into surgery to reconnect his bowels. The reason for the surgery was Necrotizing Enterocolitis. If you want to know more about this visit this website: http://children.webmd.com/tc/necrotizing-enterocolitis-topic-overview
I will work on keeping everyone updated. Talk to you later!
Friday, June 20, 2008
Wednesday, June 18, 2008
Thursday, June 5, 2008
The longer I am here, the easier it gets. The first two days were the hardest. I would way rather be home, but I'm finding ways to be productive and spend the time. I am free of my IV and the accompanying 6 foot friend that goes along with it. I only get monitored twice a day for twenty minutes right now (baby and contractions). Tomorrow that will change. I will be monitored constantly starting tomorrow. So I've had two days of freedom. Getting up to go to the bathroom is such a breeze! I also can wear "normal" clothes, which is kind of weird when you are in the hospital. But it sure helps you feel so much better. I'm almost done with the first book of the Twilight series. I like where the author is going with it so far. I've got about a third of the book left to finish reading, which I'm sure I can get done tonight. I find it an easy read, so I've been reading fairly fast. So, today I've watched TV, did some crocheting, played around on the computer, and now I think I'll watch a movie.
As I look out my window I can see the windows of some of the other delivery rooms. I always know when someone is having a baby because the blinds close on the windows. Then the next day there are open again! I guess they put the delivery rooms on the top floor because it is closest to heaven!
Wednesday, June 4, 2008
2.YOUR GANGSTA NAME (first 3 letters of real name plus izzle): Chrizzle
3. YOUR DETECTIVE NAME: (fav coulour and fav animal): Blue Cat
4. YOUR SOAP OPERA NAME: (Middle name and current street name): Lynne 1630 West (that doesn't make a lot of sense, that's Utah!)
5. YOUR STAR WARS NAME (The first 3 letters of your last name, first 2 letters of your first name, last 3 letters of your mom's maiden name): Stachrow
6. YOUR SUPERHERO NAME: (2nd favourite color, favorite drink): Red Milk
7. YOUR ARAB NAME: (2nd letter of your first name, 3rd letter of your last name, any letter of your middle name, 2nd letter of your moms maiden name, 3rd letter of your dads middle name, 1st letter of your siblings first name, last letter of your moms middle name): Hayrrtn
8. YOUR WITNESS PROTECTION NAME: (mother's middle name): Jean
9.YOUR GOTH NAME: (black, and the name of one your pets) Black Moses
Monday, June 2, 2008
Well, I suppose I could keep an update on what's going on around here at the hospital. Today is the third day of my stay. Pretty quiet around here. Makes me wish the kids were around. I'm sure they are loving their stay with Grandma and Grandpa. Not a whole lot to do. I read, watch tv, and get on the computer. I occasionally have visitors and get phone calls. You have a lot of time to think and stare out the window. I just read a cute book called Star Girl by Jerry Spinelli. It is a quick easy read. It was good. Now I have the first book of the Twilight series and I will get started with that tonight. Sharon, an old friend from high school, brought them by. She was a Christenson for any of you who remember (mostly us girls). It was good to see her. She has a little girl who was born at 27 weeks, named Eliza. She's so tiny and cute. She is 2 years old now. A couple of my friends from our ward came by and dropped off some yarn so I could crochet a blanket. I know the basics of crocheting, not all the technical terms the paper says to make it. But I think we'll get it figured out.
I'll be getting a steriod shot by the end of this week. This will help to mature the baby's lungs for delivery whenever it happens. They are hoping to take my IV out tonight as my bleeding has pretty much stopped. I've been getting antibiotics through the IV as well. I have to drag the IV pole with me everywhere, which basically is just the bathroom. I call him my six foot friend.