Christina and Family: 10/25/09

Monday, October 26, 2009

I Can Guarantee He is Not Always Hungry

Alex has Prader-Willi Syndrome. People with this syndrome are said to have an insatiable appetite and put on weight rapidly. While the rapid weight gain is true, the insatiable appetite is in question. We attended a conference where a study was done and their finding lead them to believe that they do not have an insatiable appetite, merely they are seeking out food because it brings them pleasure. I find this true with many things Alex does. If he likes something, he wants to do again and again and will use the event in his make believe play. For example, church. He loves everything having to do with church. He's obsessed with the Mormon Tab. He plays church with his Little People and every Sunday sits in his room and sings the Hymns. So in the case of food, food definatly brings people pleasure and they seek that out, and because of this we've mistakenly assumed that they have an insatiable appetite. Disclaimer: this is not a theory that is accepted by the PWS Association. This is merely a new theory. But I totally believe it to be true. Besides the research that was done, I have my own proof. On the counter sits eight bananas. Alex will not touch them because they have brown spots on them. He only eats bananas that do not have brown spots. I will not lock those bananas up and I can guarantee they will be there in the morning. Now if Alex was really starving all the time and would eat anything, I would expect him to eat those bananas. But he doesn't and he never has.

Sunday, October 25, 2009

Sunday

Sunday mornings usually aren't too crazy around our house, well except maybe for today. I was taking my time getting ready for church this morning (we start at 9) because I have the help of the greatest guy ever! Well, at 7 this morning, the hospital calls in him because they are short nurses. So Todd has to leave and I'm left to get the kids ready to go on my own. The girls are pretty good at helping, so that was good. I'll admit, I am not that great at keeping this house together. Somewhere in the mass chaos of my life, Alex's white shirt did not get washed. Of course he doesn't say a word about this to me. He takes his shirt and sticks it in the washer, 15 minutes before we have to leave! So as I'm hollering at everyone to head to the van and asking Alex why he's not dressed, he tells me his shirt is washing. I tell him he's going to have to wear something else, and of course this is not possible. He pulls his shirt out of the washer and puts it in the dryer and I tell him I'm just going to have to leave him and come back later and get him. He's crying now and doesn't like this, but what do you do? I play the organ for Sacrament and by now it's a quarter to nine, fifteen minutes later than I usually leave. So we just leave him. I was thinking the whole way to church that I'll just ask someone else to play. I arrive and no one that I know who can play is there, so I just begin to play prelude. Oh, and I have to say, there's this sister in our ward, Rose, who watches after Seth for me when Todd is not there, and she is such an angel! Seth actually doesn't fuss too much when she has him. With anyone else he just cries the whole time! So I'm playing prelude scanning the audience to see if the three people I know who can play organ are there yet. No one yet and it's getting closer to the start of the meeting. I decide that I'll just play the opening and sacrament hymns and then go get Alex. Today was the Primary Sacrament Program and Alex had a part so I knew I needed to get him for that. The whole time I'm playing I'm also praying that Alex didn't decide to walk as he'd have had to cross a six lane road to get to the church! I was also hoping he wouldn't be too mad not to come to church with me when I went to get him! So after the sacrament hymn, I slip out the door and drive home to get Alex. We live maybe 2 minutes away from the chapel. When I arrive Alex is dressed and waiting! I was so happy I didn't have to fight with him! When we got to the church, Alex wouldn't go into the chapel. He just stood by the back door to the chapel until it was his turn to say his part. I missed Kate's talk at the beginning, but I did get to hear the other three children. It started out crazy, but turned out to be fine! And what's even better is that during Sunday School Todd arrived! They let him come home! It's going to be a great Sunday after all!

There's this guy in our ward who is mentally handicap, I'm not sure what he has, but every time he comes up to me and sees me holding Seth, he always comments on how bright Seth's light is shining! I love that! One angel talking to another!

Subscribe to: Posts (Atom)

Funny Mishaps

November 2011

During Primary, the song leader is trying to teach a song about the Nativity. She asks, who is Jesus's mother? Someone answers, "Mary". Then she asks, who is Jesus's father? Karsten (6) replies, "Joseph Smith".

September 2011

Karsten (6) asks me "how can you tell if a baby is a boy or a girl when they are born.?" I reply, "How do you think you can tell the difference between a boy and a girl." Karsten replies, "their hair." I then tell him that pretty much all babies either don't have hair or it's really short and to think of another way. Karsten then replies, "by their eyelashes." I tell Karsten everyone has eyelashes! Trying to get him to think harder, I ask him what's different around their bottom areas. Karsten says, "oh, their diapers!" (Just for the record, he finally knows how you can tell the difference between a boy baby and a girl baby!)

August 2011

Karsten (6) comes into the house yelling for a bandaid. I ask him what for. His response: "Blood leakin'."

April 2010

Karsten (5) informs me that when it's his turn on the computer he is going to go on YouTube and look up cheat codes. Where do they learn these things? :)

March 2010

As we are driving down the road, Dane (7) sees a sign that says "Beer and Wine". He then asks, "Why does that sign say Beer and Wine?" He goes on to answer himself by saying, "It must be because after they drink beer they w(h)ine."

March 2010

Karsten (4) tells me, "Mom, if you type in the password for the computer, I'll let you play with me." The next day he comes up with this one: "Mom, I'll give you this if you let me play the computer." I ask him, "What do you got?" Karsten replies, "An M&M." Apparently, my son has been trying to bribe me to let him to play the computer lately.

August 2009
Dane (7): Mom, I'm bored.
Me: Why don't you take a nap?
Dane: I'm too tired to take a nap.

May 2009
At Walmart I tell Alex (11) he can get some crystal light. So off he goes to find some and brings back every flavor they sell! Needless to say we did talk him into choosing just two. And later on that same trip I tell the boys they can have a Hot Wheel. Alex took down almost all the cars off the racks looking for a police car. Never let Alex shop alone!

May 2009
At Matt and Denise's house, I ask Karsten (4) if he wants a frozen burrito for lunch. He replies, "No, I want it cooked."

May 2009
As we are traveling down to New Mexico, I look in my rear view mirror and see Karsten (4) with his finger in his nose. I asked him if he was picking his nose and he said, "No, I'm just checking."

April 2009
I asked Karsten (4) to open up the washer and take the clothes out and put them in the dryer. (We have a front loader.) So he goes into the pantry, opens up the washer, grabs a few clothes, and asks, "Where do I put them?" I tell him, "In the dryer." He then asks, "This dryer?" As if there are two or three dryers in the pantry and he has to ask which one to use!

March 2009
Karsten (4) was spotlighted this past Sunday for his birthday and was sung to as well. His birthday is this upcoming Saturday (the 28th). Well, since they sung to him he insists that he is already four years old and no one is going to convince him otherwise.

March 2009
Karsten (3) is obsessed with light sabres. Everything is a light sabre. Only he calls them light savers. So, I tried teaching how to properly say light sabre. I was telling him to say sa-bre. And he was thinking I was telling him to SAY ber. So he would just say ber. Ok, if that really didn't confuse you, then you get the joke. It was quite funny.

February 2009
Emily (8) wakes up and tells me her stomach hurts and she doesn't want to go to school (like we've never tried this). I tell her that she needs to get up and get ready for school. She wines a little and complains about her stomach, but we moms know better. I tell her to get out of bed again and she then says, "Well, Kate got to stay home on Friday." (Kate faked sick the Friday previous.) I then tell Emily, "Yes, and she had to clean all day too." Emily jumps out of bed (miraculously healed somehow) and gets ready for school. Can't pass the "my stomach hurts" one on this old pro!

February 2009
We recently got a handicap parking pass for Alex so we can park in the handicap spots now. Every where we go Karsten (3) has to point out the handicap spots. The funny part about it is that each time he sees one it's like he's never seen one before. He sounds so amazed when he points them out.

February 2009
Karsten (3) has been sick with a cold and it has gone to his eyes. When he woke up this morning I told him that I was wondering if he had pink eye. He then goes into the bathroom, looks in the mirror, and says, "No, they're still blue."

December 2008
Karsten (3) is getting himself dressed and puts his shoes on without socks. I tell him to take his shoes off and put his socks on first. He looks up at me and says, "Mom, can we pretend that I am wearing socks?" Who can't keep from laughing with a response like that!

November 2008
Alex (10) is playing with the neighbor girl. She tells Alex that her dad caught a mouse and put it in a jar. They go over to her house and get the jar with the mouse in it. They bring it to our house. Alex wants to see if Moses could catch the mouse. So he gets Moses and then lets the mouse out of the jar. Moses chases the mouse into Alex's bedroom where it quickly disappears. Needless to say, the mouse was found later that night in Alex's dresser.

October 14, 2008
I am in the bathroom doing my hair. Seth (4 mos) is lying in his crib and Dane is happily watching him. All of a sudden Dane (5) runs into the bathroom and yells, "Mom! Seth said his first word!" I then ask him what Seth said. Dane replies, "Meow".

October 14, 2008
Todd and I are sitting on the couch when from behind I hear Karsten say, "Look, I have nipples!" I turn around to look and Karsten has placed an open hamburger bun on his chest. Now I've heard of a coconut bra, but a hamburger bun bra?

September 23, 2008
Todd and I are talking to Kate (9) and discussing human anatomy when we ask her if she knows where babies grew inside the mommy. At first she replies, "in the kidneys". Then she thinks about it for a minute and then says, "oh, the uterus, I thought that was the name of a planet."

September 2008
On the way to school, Kate (9) and Emily (7) are discussing what they are learning in school. Kate mentions that they are learning about the water cycle. Emily comments that she has already learned that. Kate has to flaunt her newly acquired knowledge by asking Emily if she knows what condensation, evaporation, and participation is? I couldn't help but laugh and asked her if she meant precipitation.