"He is there not only when we cry out from the burden of sin but also when we cry out for any other reason." -Bruce D. Porter

Saturday, August 31, 2013


We had another appointment with our cardiologist. Things are still the same (pressures between 80-90) but no worse. A blessing! Seth shows no symptoms of Pulmonary Hypertension. Another blessing! What's even better is that Seth now weighs 31 1/2 pounds and has the best appetite of his life! Last year, Seth leveled out at 29 pounds and flat lined there for almost a year. Many blessings have been felt this past month.   Seth has a good quality of life right now, so we will not do anything different, except we will increase his sildenafil slowly over the next few months, but this is all for now. We feel so blessed right now!
Here is Seth during his echo. He kicked back and fell asleep! The echo tech never had it so good! No wiggly crying child to convince to hold still! 
Seth only gets a little nervous when they attach all the wires for an EKG. He is a little uneasy that they are going to poke him. No Seth, the lab guys are responsible for that! :) But Seth does well if he's got a little Angry Birds to play!

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