Christina and Family: Another visit with the cardiologist

Wednesday, April 10, 2013

Another visit with the cardiologist

We had our final visit with Dr. Berger last week. Unfortunately the pressures in Seth's heart have not come down one bit! It was a little disappointing to hear. Fortunately Seth still shows no symptoms of Pulmonary Hypertension and his heart function looks good. Ok, back up, I say Seth shows no symptoms but that is because we haven't seen anything different. Seth does not play as hard and doesn't have the strength as a "normal" four year old, but the level that Seth does play at, we never see him tire or get short of breath. Maybe it is the Pulmonary Hypertension that causes him not to have as much strength and energy or maybe it's low muscle tone. Or maybe a combo of both! Anyways, we discussed our next options which are an inhaled medication or IV medications. We didn't go much into the IV meds as the doctor really wants to start him on the inhaled one. Unfortunately since we are moving so soon, the doctor wants us to wait until we get to Texas and discuss options with our new cardiologist. We did increase the sildenafil dose up to 4 mLs three times a day. Part of me is like, if these meds aren't working, then why are we still taking them? I know, patience. I am sure we just have to find the right mix. It would be nice to get off the Bosentan so we don't have to do monthly blood draws anymore.

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Funny Mishaps

November 2011

During Primary, the song leader is trying to teach a song about the Nativity. She asks, who is Jesus's mother? Someone answers, "Mary". Then she asks, who is Jesus's father? Karsten (6) replies, "Joseph Smith".

September 2011

Karsten (6) asks me "how can you tell if a baby is a boy or a girl when they are born.?" I reply, "How do you think you can tell the difference between a boy and a girl." Karsten replies, "their hair." I then tell him that pretty much all babies either don't have hair or it's really short and to think of another way. Karsten then replies, "by their eyelashes." I tell Karsten everyone has eyelashes! Trying to get him to think harder, I ask him what's different around their bottom areas. Karsten says, "oh, their diapers!" (Just for the record, he finally knows how you can tell the difference between a boy baby and a girl baby!)

August 2011

Karsten (6) comes into the house yelling for a bandaid. I ask him what for. His response: "Blood leakin'."

April 2010

Karsten (5) informs me that when it's his turn on the computer he is going to go on YouTube and look up cheat codes. Where do they learn these things? :)

March 2010

As we are driving down the road, Dane (7) sees a sign that says "Beer and Wine". He then asks, "Why does that sign say Beer and Wine?" He goes on to answer himself by saying, "It must be because after they drink beer they w(h)ine."

March 2010

Karsten (4) tells me, "Mom, if you type in the password for the computer, I'll let you play with me." The next day he comes up with this one: "Mom, I'll give you this if you let me play the computer." I ask him, "What do you got?" Karsten replies, "An M&M." Apparently, my son has been trying to bribe me to let him to play the computer lately.

August 2009
Dane (7): Mom, I'm bored.
Me: Why don't you take a nap?
Dane: I'm too tired to take a nap.

May 2009
At Walmart I tell Alex (11) he can get some crystal light. So off he goes to find some and brings back every flavor they sell! Needless to say we did talk him into choosing just two. And later on that same trip I tell the boys they can have a Hot Wheel. Alex took down almost all the cars off the racks looking for a police car. Never let Alex shop alone!

May 2009
At Matt and Denise's house, I ask Karsten (4) if he wants a frozen burrito for lunch. He replies, "No, I want it cooked."

May 2009
As we are traveling down to New Mexico, I look in my rear view mirror and see Karsten (4) with his finger in his nose. I asked him if he was picking his nose and he said, "No, I'm just checking."

April 2009
I asked Karsten (4) to open up the washer and take the clothes out and put them in the dryer. (We have a front loader.) So he goes into the pantry, opens up the washer, grabs a few clothes, and asks, "Where do I put them?" I tell him, "In the dryer." He then asks, "This dryer?" As if there are two or three dryers in the pantry and he has to ask which one to use!

March 2009
Karsten (4) was spotlighted this past Sunday for his birthday and was sung to as well. His birthday is this upcoming Saturday (the 28th). Well, since they sung to him he insists that he is already four years old and no one is going to convince him otherwise.

March 2009
Karsten (3) is obsessed with light sabres. Everything is a light sabre. Only he calls them light savers. So, I tried teaching how to properly say light sabre. I was telling him to say sa-bre. And he was thinking I was telling him to SAY ber. So he would just say ber. Ok, if that really didn't confuse you, then you get the joke. It was quite funny.

February 2009
Emily (8) wakes up and tells me her stomach hurts and she doesn't want to go to school (like we've never tried this). I tell her that she needs to get up and get ready for school. She wines a little and complains about her stomach, but we moms know better. I tell her to get out of bed again and she then says, "Well, Kate got to stay home on Friday." (Kate faked sick the Friday previous.) I then tell Emily, "Yes, and she had to clean all day too." Emily jumps out of bed (miraculously healed somehow) and gets ready for school. Can't pass the "my stomach hurts" one on this old pro!

February 2009
We recently got a handicap parking pass for Alex so we can park in the handicap spots now. Every where we go Karsten (3) has to point out the handicap spots. The funny part about it is that each time he sees one it's like he's never seen one before. He sounds so amazed when he points them out.

February 2009
Karsten (3) has been sick with a cold and it has gone to his eyes. When he woke up this morning I told him that I was wondering if he had pink eye. He then goes into the bathroom, looks in the mirror, and says, "No, they're still blue."

December 2008
Karsten (3) is getting himself dressed and puts his shoes on without socks. I tell him to take his shoes off and put his socks on first. He looks up at me and says, "Mom, can we pretend that I am wearing socks?" Who can't keep from laughing with a response like that!

November 2008
Alex (10) is playing with the neighbor girl. She tells Alex that her dad caught a mouse and put it in a jar. They go over to her house and get the jar with the mouse in it. They bring it to our house. Alex wants to see if Moses could catch the mouse. So he gets Moses and then lets the mouse out of the jar. Moses chases the mouse into Alex's bedroom where it quickly disappears. Needless to say, the mouse was found later that night in Alex's dresser.

October 14, 2008
I am in the bathroom doing my hair. Seth (4 mos) is lying in his crib and Dane is happily watching him. All of a sudden Dane (5) runs into the bathroom and yells, "Mom! Seth said his first word!" I then ask him what Seth said. Dane replies, "Meow".

October 14, 2008
Todd and I are sitting on the couch when from behind I hear Karsten say, "Look, I have nipples!" I turn around to look and Karsten has placed an open hamburger bun on his chest. Now I've heard of a coconut bra, but a hamburger bun bra?

September 23, 2008
Todd and I are talking to Kate (9) and discussing human anatomy when we ask her if she knows where babies grew inside the mommy. At first she replies, "in the kidneys". Then she thinks about it for a minute and then says, "oh, the uterus, I thought that was the name of a planet."

September 2008
On the way to school, Kate (9) and Emily (7) are discussing what they are learning in school. Kate mentions that they are learning about the water cycle. Emily comments that she has already learned that. Kate has to flaunt her newly acquired knowledge by asking Emily if she knows what condensation, evaporation, and participation is? I couldn't help but laugh and asked her if she meant precipitation.